Sunshine, Swings, and Sleep

Yesterday was a little better day. Tyler was still fussy but as long as I kept him entertained he was somewhat happy. He let me get a couple good pictures of him.



We went on a walk outside and he sat facing forward in his stroller for the first time. This was only the second time we have gone on a walk because when we came home from the hospital the middle of October it was starting to get cold and I didn't want to take a chance on him getting sick with all of his other problems. So yesterday we decided it was warm enough to go. It felt so good to get out of the house and get some sunshine! My Grandmother came over to see Tyler while we were outside so we came back in to visit with her. Tyler started to get sleepy and fussy so I decided I would try his swing out again. Usually he HATES it and screams when he is in it. He actually liked it this time and stayed in it for a good 10-15 minutes. I was SO happy.
After my Grandmother left my other Grandmother came by and Tyler was melting down, FAST! So after they left I fed Tyler. Our sleeping arrangements are not very good. Tyler has to be held ALL night in order for him to sleep. I KNOW it is not good for him or anyone else but when you have a sick baby you will do anything to comfort them. Last night he wouldn't go to sleep with me rocking him so I decided I would lay him down in his bassinet. He actually went to sleep after about 10 minutes and slept there for 10 hours. I COULD NOT BELIEVE IT!!! I actually woke him up at 10:30 this morning to eat.
Hopefully after his good nights sleep last night he will be a happy baby today! Chad is home with us and I am so excited about that. As his surgery date is getting close I am getting anxious. Please pray for me to be calm and not worry so much. I know God is in control of this situation and that He already knows how it will turn out. I keep repeating Eph. 3:20 "God is able to do immeasurably more than all we ask or imagine". I loved that verse during my miscarriage and through out my pregnancy with Tyler when we first found out about his kidneys. How do people make it without the Lord?
Well I am going to go and enjoy the day with my two favorite boys! Hope everyone has a great weekend.

He Is With You

Today has been another long day. Tyler has been very fussy and nothing I could do would make him happy. He cried, screamed, and cried some more. I just feel so bad for him. I know he is in pain but I never know what is hurting him at that moment. Chad was home with us today. I don't know if I could have made it without him here. Last night I couldn't sleep so I downloaded some music. I downloaded Selah newest CD You Deliver Me. It is SO good! I also downloaded one of Mandisa's songs He is With You. I just sat there and listened to that song over and over. It was so comforting to know He is with us during the good and bad, the expected and unexpected, and the easy and tough times. I found this one on youtube so I thought I would share it. It is well worth the 99 cents on itunes!



We got a new SRL digital camera last weekend. I wish we would have had it before Tyler was born so I would have had time to figure out how to use it. It is going to be awesome once I can figure it out. I took some pictures today on the auto mode so I will share some of them later on tonight when I have time to put them on my computer.

Unexpected, Unwanted News...

Today has been a long day. We took Tyler back to the urologist for his last check on his nephrostomy tube before his surgery. I had been praying all week that God would somehow, someway make Dr. Elmore recheck for the blockage and reflux because we still serve a God who works MIRACLES!! But that did not happen today. Instead we were told that Tyler will not only need one surgery but he will need three before he is one year old. He will also leave the hospital with the nephrostomy tube we were praying we could leave behind. I have a heavy heart tonight. It is so hard to see Tyler seem completely healthy on the outside but know there are things wrong on the inside. I love him more than words can express and I would take this on myself if it were possible. But it isn't so I just have to be there to comfort him as much as possible. I dread and look forward to January 28 because I want to get it all behind us but he is just too small to be in such a big situation. Please join me in prayer for his healing... However
God may heal him!


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